There was definitely a cult like atmosphere in the house I could not explain. We also found that patients and their families often do not receive crucial information to make informed decisions about hospice care. "Your mom looks so peaceful and she looks exactly the way she did when she was alive", to that my 16 year old responded with, "but much much thinner". But hands-on help is scarce. My father died an hour later. Her oncologist found the cancer had spread to her ribs and spine and suggested she begin hospice care. Hospice killed my dad. When he came back home, hospice called and told us about their program and how they help patients with a long term illness and their pain. I know it is in the law. My name is Kevi Bernier and I swear that this is the truth. Hospice Almost Killed My Father Who is Not Terminal User Name: Remember Me: Password : Please register to participate in our discussions with 2 million other members - it's free and quick! denied the funeral parlor Becker funeral parlor who also illegally cremated my mother suspicoulsy locked in her room in sunrise NO visitors allowed under the son and varnum ; cremated her NO abilyt ot view her remains NOW my fahter ND HIS priest reported how his wishes for a catholic viewong and mass priorr to cematoini ALSO I called the DOH dept of health wqhich was MY rioght thehy opened a case as " starrving my dad over dosing him and no eye glasses hearing aides such reported twice" the Lawyer wrote a letter DUE TO BRENDA calling the DEPT OF heath She upset the LEGAL counsel fo Valley hospice IN Paramus NJ the legal counsel and and the supervisor an RN joanna hanna : so NOW JOHN Sheehy my dad WILL HAVE NO VISITS as he clearly stasted " I DO NOT know why your father is dying .. dont care and also was stated to Father PAUL NO VISITS for JOHN : he needs ot die alone ; : SO HE DIEs alone NO ONE by his side with a sign over his heaD He was now unconscious due to medicatoins morphine and sedatives every 3.4 hours aide confirmed ; DO NOT FEED HIM ONLY HOSPICE MEDS SUNRISE also attaempted to haVe ME SIGN as this lawyer KNEw sign a " Euthanasia contract " IF YOU feed him or ask about his med YOU wil be asked ot leavE on JLY 9 i gaVe that to polkcie they wenet in for a safety check : THEY deny this ; well here is the contract the officer was kind that is when they started wiht laxative supposoitories all on record ' FROM jluy 5-19 that is what was DONE by a judge 3 lawyers hsi son colleen varnum adn hospice valley hospice who raged as recorded at me on phone just prior to july that july 3 and 4 and for a year MY DAD and I are chatting on phone laughing LOVE YOU BRENDA MISS YOU ; see you soon YES dad I will bring you food they were denying him food the sunrise lied and even attemtped to put him in a psych hospittal : it was so evil WE threatned to sue MY DAD was with his aides and i was outside of window he fell i heard it ; the lawyer wright robert and colleen varnum lied stated " as my dad is heard " I am ok ' and the aides pickiing him UP " they were oof site ' they wrote more lies " HE was in the hallway ( blind deaf using a walder cannot see as they refsued my pleas to JUST give me the scripto for his eye glasses nad his broken hearing aids i will pay and replace NO ) that my dad was in hallway beating up residents ; THE ENTIRE facilyt was ON LOCK DOWN NO ONE COULD LEAVE THEIR APT .. I ask them again about food and drink and get a response that I can't believe. We talked, but it was nothing special. Until last year, hey found my dad's cancer by Justice over a year ago I called the switchboard again, and it took three hours for a new nurse to come. These messages are entirely unedited, except for the addition of paragraph breaks for readability. Family Caregivers Bear Much Of The Burden Of Home Hospice "I think what we really need to do is be broadening the support that individuals and families can have as they're caring for individuals throughout the course of serious illness," Ornstein says. At my father's bedside, I learned what death looks like Murder is murder by any device. He couldn't walk though because he fell. were his last words to me. My Mum had been suffering from renal cancer, which was, apparently, also in her lymphatic system, but of which there were no current mestases in other locations, although the byproducts from her tumour were kicking off a few problems with her lungs requiring her to use a supplementary oxygen supply. I was angry, to be honest. Once he went to hospice, he was never given anything for his terrible pain and my aunt believes he was simply "allowed to die" -- one of their favorite phrases. According to their investigations, the hospice system, which began idealistically in the 1970s, is stretched thin and falling short of its original mission. My sister begins to administer morphine. I don't really know. She was overmedicated and dehydrated to death as quickly as possible. He wasn't ready to die. How often you administer it and the dosage vary depending upon the means of administration. Did hospice rush your loved ones death? - AgingCare.com As Christine started speaking, moms eyes opened wide, and she started talking. Now my younger Brother is sick from a mysterious illness also and hospice wants him two. Jean McCasland's husband hasn't complained. "I'm not anti-hospice at all," says Joy Johnston, a writer from Atlanta. That is a basic need. That was the worst mistake made. But it wasnt up to me. Prescriptions show up at the house for pain and anxiety. And it only gets better. my sweet mother passed under the care of hospice, my two siblings and a non-hospice caregiver. My father died an hour later. Hospice and the Death Cults of Modern Medicine I was making plenty of crazy noise, but no assistance came from the medical team. I couldnt even promise hed find out who won the baking show that season. She was surprised he hadnt been set up with a pump for a more effective painkiller. His voice is jolly and tipsy. In mid-October she was complaining of back pain. Jean died in October after 13 months on home hospice. I hope hospice gets caught soon and someone to sue them. Hospice just killed my father this week and I am still struggling with the grief and guilt of being coerced into putting him there. Her pain was relatively under control-morphine works-but she was getting very forgetful and was sleeping all the time. That would be the last time my sweet mother was truly present with me. Cancer Treatment Its an emotional high-wire act, Ms. Griffin said. My dad's DEATH was definitely induced by the last Hospice team that entered our home. And that really is the way I applied it to me; Youre okay as you are; how can I help you suffer less?. I pushed past them to get into the room, so eager was I to see how she was and to carry out my plan of giving her fluids. Although CMS did not agree with a number of them, we believe they are essential for weeding out poorly performing and unscrupulous hospice providers: Patients and their family members can help guard against fraud by carefully reviewing the summary notices they receive from Medicare detailing the services for which Medicare has been billed on their behalf and report those that were not authorized or received. When my father was dying of pancreatic cancer last summer, I often curled up with him in the adjustable hospital bed set up in his bedroom. She even tried to bite me. I did receive a card with their signatures about two weeks after his funeral. Dying the Christian Science way: the horror of my fathers last days I lost my mother last Tuesday and besides the normal sadness I am trying to deal with the pain inflicted by Hospice Inspiris which took over the care of my 95 year old mother before she was even terminal. Sepsis is potentially fatal because it can lead to tissue damage and organ failure. over 7 months ago, Guest The Inspector Generals office made recommendations to the Centers for Medicare and Medicaid Services, which runs Medicare, in seven key areas. She needs a service that hospice rarely provides a one-on-one health attendant for several hours, so the regular family caregiver can get some kind of break each day. Her supervisor stopped by, showed us the proper way to deliver morphine (wed been doing it wrong) and told us a pain pump and a crisis nurse should arrive by noon. But agencies that need to generate profits for investors aren't building dedicated hospice units or residences, in general, mostly because such facilities aren't profitable enough. I didn't know ANYTHING about hospice before. I wasnt prepared for the round-the-clock-ness of it. My dad could do everything but walk. My On Day Three (Monday), Mum spent most of the day sleeping, drugged up. But as the business has grown, so has the burden on families, who are often the ones providing most of the care. They put him in the hospital and then said he had to go to rehab hospital so he could stand on his own and how fall. I called my kids in and they got to talk to her. Again, no terminal illness. "So, our focus is building programs that help them be there.". The solution may have to come from consumer advocacy and better regulation from Medicare itself. When I questioned them there response was, she doesn't need many calories. In contrast, Teno says, in her father's final hours, he was admitted to a hospice residence. Was the care his wife got worth that? Day Four, her final day, started at 9.00am with me being denied access to her room. My dad was also KILLED BY HOSPICE/MORPHINE. I travelled with Mum to the hospice in an ambulance. This means she was eating every other week. WebIn the last days and hours of my moms life, a lot of stuff came up that I wasnt prepared for: deciding between keeping her in the hospital versus taking her home for hospice care, or My grandfather had metastasized prostate cancer so he was terminal. The misconception is that hospice leaves as Its a crushing burden, it would seem to me. Each morning, nurse's aide Karrie Velez pulverizes McCasland's medications in a pill crusher and mixes them into her breakfast yogurt. They told us they were there for us, 24 hours a day. Moms health went from bad in November to worse by the time the holidays drew near. that is recorded the JUDGE stated " well we all go via this " NO judge no lawyers we do NOT go via this he has NO hospice diagnosis I am an RN BSN even on hopice WE DO NOT starve and euthanized humans He is catholic THE lawyer stole his money then cremated HIM HE had NO authorigyt over MY fathet HIS guardianshp was OVER I asksed ford A MEDIAL for my dad? -Mick Rhodes THEY WILL KILL THEM WITH MORPHINE. My mother had breast cancer found in lymph nodes for seven years. Days passed and we didnt hear from them. Not every living situation is ideal, she added. I've never seen the doctor EVER. The idea that hospice care could abuse and neglect patients when they are at their most vulnerable, or exploit them for unjust enrichment, is repellent. Quality hospice care can provide significant comfort and support to terminally ill patients and their families and caregivers. Hospice killed my mother slowly , mom was put on hospice by the choices program and dr Whorley because they said mom was in the hospital to many times with asperating nemonia,after 3 days of no eating or drinking I rushed mom back to the hospital because Amedsis Hospice was not helping her. "I told my family, if there is such a thing, I will come back and I will haunt you," she says with a laugh. "Coordination and cooperation with federal, state and local law enforcement officials on mutual drug enforcement efforts ." ". Enough time has passed since then that the mental fog she experienced while managing his medication and bodily fluids mostly by herself has cleared, she says. Hospice care is a lucrative business. Hospice Not Resuscitate: My Experience with Hospice I dont pretend to take all suffering away, I just dont pretend not to see it, and not to try to help, and to try to be a facilitator of unity in the care plan that doesnt alienate those to suffer alone, Dr. Dauwalder said. And she was present and fairly lucid and I got to tell her everything I wanted to tell her. Since the mid-1990s, Medicare has allowed the hospice benefit to cover more types of diagnoses, and therefore more people. I wish I found out about this earlier. There are times when I have to take a moment to have my feelings, and then I get back to what I do with boundaries that I think are safe and strong and sustainable for me. WebTo add to this case study pool, my mother (70) was killed by a UK hospice last week through the method of dehydration and starvation, made possible by use of an This Was Not the Good Death We Were Promised They also gave my mother peace of mind that her beloved husband was receiving kind attention in his final weeks. ---------- I have a friend that is being killed at this moment. Hospice Horrors - Catholic Exchange It was magic. For example, one intimate task in particular changed Joy Johnston's view of what hospice really means trying to get her mom's bowels moving. Let's go! I tried to talk her out of coming over. Why are lay people trusted with the morphine/drug kits? I considered making a complaint in the days after my dads death, but frankly we were just too sad. Blake Farmer/WPLN Convinced it was a hospice murder, Martin started calling anyone who would listen, asking them to investigate: Her local district attorney. I am still shocked by the whole traumatic experience but mostly that I did not stand up to any of them for what they did. After metastasizing the cancer reached her brain she was on intense chemotherapy for a year. My father died at the age of 73, he had cancer before but he did surgery to remove them and also undergone treatments. Still, when it comes to where we die, the U.S. has reached a tipping point. She made many attempts over the years to woo me over to Gods way. Our youngest sister was also lost due to hospice and I dont know if hospice had her authorization neither. The cancer in her brain was gone, though according to oncologist, she still had cancer in her liver? In a North Texas case, nurses allegedly gave high doses of drugs such as morphine, regardless of whether patients needed it, to justify receiving the higher hospice payments. He was saying he couldn't breathe, so my mother called the hospice nurse. This consisted mainly of nurse visits, directed by possibly the most incompetent doctor i have encountered (the so-called medical director-Justo Cisneros) who seldom saw my mother and took her off her meds. She was hallucinating, and the visions werent pleasant. I am trying to find a lawyer who will take my case and I pray this doesn't happen to another family. The hospice is permanently closed. I couldnt promise he would get to see his childhood friends from England one more time. He does not have a terminal illness but is dying slowly from the stroke he suffered 11 years ago. We never met the lady from hospice before our Fathers demise and she said she lived in this neighborhood. This was 8 years ago. The next day gave dad a morphine an hour until he died. My mom had a brain aneurysm 8 years ago which she recovered from. We were arrested in our front yard for a false charge that was latter dropped because I threatened to sue hospice. I quickly restored the oxygen supply to its normal level, held her head forward and called for her to respond. A team of four nurses went inside and closed the door - I don't know what they were doing, but it was explained as 'freshening her up'. Now, she wants to make sure her children don't do the same for her. I give him such a look. But," she notes, "it may not be comfortable for family members watching them taking their last breath.". Even when hospice took over, he still found he needed the extra help from Karrie Velez (center). Apparently, the lower spine bones got squished together which caused pain. Shortly afterwards, the rest of my family arrived in the room. I couldnt promise that the book hed been working on would ever be published. hide caption. WebMy father spent 10 days dying. "While it was difficult for me to witness, I knew what to do," she says. Shocked by this the caregiver and I would bring food. I can't believe I'm reading all these horrible posts about Hospice now. But I loved her, so of course Id support her wishes. Hospice agencies primarily serve in an advisory role and from a distance, even in the final, intense days when family caregivers, or home nurses they've hired, must continually adjust morphine doses or deal with typical end-of-life symptoms, such as bleeding or breathing trouble. Thank you for contacting VNA Hospice & Palliative Care of Southern California. WebHospice may have kept your family from experiencing that kind of passing for your dad and grandma. We were crying and convinced she was about to pass away. Nurse said quote the doctor could lose her license if found out. For 2 days despite care the bill was endless and the charge for room only was 2000.00 billed to my Medicare. For several months, things went well. "It's ironically called the 'comfort care kit' that you get with home hospice. Contact our 24-hour day call center at 1-800-969-4862 and a representative will be able to assist you immediately. Hospice Many locations WILL NOT do an autopsy if under "hospice" care. Hospice killed my In my book this is fraud but it is very difficult to prove!!!